On the 28th February every year marks Rare Disease Day. This year its on the 29th February - Leap Year. I have two - Tuberous Sclerosis and Lymphangiomiomatosis. When I was young around 6 I had some suspicious lumps removed from my face. I remember having them and then not having them. I know … Continue reading Its Rare Disease Day 29th February
Family
Goodby 2019 and Hello 2020
Sitting here watching the devastating fires happening in Australia makes me realize how lucky I am. Im in my lounge room with the TV on, lap top on my lap, sun shining with a blue sky while others are on the beach or in boats shielding themselves from the smoke and flames. I have friends … Continue reading Goodby 2019 and Hello 2020
Tips on traveling with a chronic illness
In less than 2 weeks Muriel and I will be heading to Europe. To be more specific Portugal and Spain. Paula will be home recuperating from a knee replacement. As most of our readers know that I have many chronic illness'. So travel takes a bit more effort and forward planning. I just … Continue reading Tips on traveling with a chronic illness
Happy New Year – 2019
Wow...its 2019 in this part of the world. A lot of you are still in 2018. So this year brings a bit of travel for us. A couple of days with my sister Muriel and her son Christopher and his girlfriend. I have to be quiet where we are going as I don't think Muriel … Continue reading Happy New Year – 2019
Vienne France
We spent an afternoon sailing along the Rhone as we headed to Vienne. We could eat as much as we liked of the "Calorie Free" Ice Cream after lunch. Then Muriel, Tania, Peter and I did a tour of the Wheelhouse with Captain Tony and Pierre about river navigation. Captain Tony … Continue reading Vienne France
La Boheme – on Sydney Harbour – Mrs Macquaries Point
Last week I flew to Sydney from Melbourne to catch up with my sister Paula, daughter Sarah and nieces Rachael and Penny. Paula, Penny and Rachael flew to Sydney from Perth. We arrived on the Tuesday, I flew via Virgin and Paula and crew flew Qantas. I hadn't told Paula who I was flying with … Continue reading La Boheme – on Sydney Harbour – Mrs Macquaries Point
Lam Lung Disease and Tuberous Sclerosis
Its Rare Disease Day on the 28th February so I wanted to share a bit more about the two rare diseases that my youngest daughter and I have. When I was young around 6 I had some suspicious lumps removed from my face. I remember having them and then not having them. I … Continue reading Lam Lung Disease and Tuberous Sclerosis
Sick? On holidays – Oh No….
I woke up in the morning and I didn't feel right. I couldn't put my finger on it. We went to breakfast. I only ate a little as I was starting to feel queasy. We were heading to a Truffle Farm and then to the town of Grignan with a tour of the castle. A … Continue reading Sick? On holidays – Oh No….
Les Baux de Provence
After the Olive Farm we headed to Les Baux de Provence. Our coach slowly wound its way up to the parking area. There was a short walk from the parking area to the Village, where many restaurants, cafe's and souvenir shops along the little cobblestone roads. The village of the Les Baux de Provence … Continue reading Les Baux de Provence
29/7/16 – Basel – part 1
Our pick up was at the Zürich Airport at 10 am, so we went down for breakfast around 8am. So much food, you name it, it was there. That was to be our introduction into how much food will be on offer for our trip After a delicious breakfast and a few pots of tea, … Continue reading 29/7/16 – Basel – part 1
