Its Rare Disease Day 29th February

On the 28th February  every year marks Rare Disease Day.  This year its on the 29th February - Leap Year.  I have two - Tuberous Sclerosis and Lymphangiomiomatosis.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I know … Continue reading Its Rare Disease Day 29th February

Barca D’Alva and a wee bit of Lemon juice and a ton of whiskey!

The afternoon after our jumper shopping expedition in Regua we set sail for  the town of Barca D'Alva.  The following day we would be heading to Salamanca.  Some of us went to the  top deck to see the 3 bridges in all their glory.  The sun was shinning.  Yet the wind chill factor must have … Continue reading Barca D’Alva and a wee bit of Lemon juice and a ton of whiskey!

Peso da Régua and our quest to buy a jumper

A couple of days before we had berthed at  Peso da Regua around 6pm so those that wanted could  visi the Douro Museum. Muriel and I had decided not to visit.  It had been touch and go whether we would get their in time for the tour.  Also it was freezing and staying on the … Continue reading Peso da Régua and our quest to buy a jumper

Lam Lung Disease and Tuberous Sclerosis

  Its Rare Disease Day on the 28th February so I wanted to share a bit more about the  two rare diseases that my youngest daughter and I have.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I … Continue reading Lam Lung Disease and Tuberous Sclerosis

Sick? On holidays – Oh No….

I woke up in the morning and I didn't feel right.  I couldn't put my finger on it.  We went to breakfast.  I only ate a little as I was starting to feel queasy.  We were heading to a Truffle Farm and then to the town of Grignan with a tour of the castle.  A … Continue reading Sick? On holidays – Oh No….

Packing my back pack!

Packing my back pack was so much harder than the suitcase.  I had my passport and travel papers in the nice wallet the Tour Company sent.  A small clear zip lock bag with my moisturizer and lip balm, and I also had some face wipes. My phone and its charger.,  travel plug, the charger for … Continue reading Packing my back pack!