Month: February 2017

Rare Disease Day… Post about traveling with a rare disease – Lam

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We’ve been on the road for over 8 months! Even though we’re still figuring things out as we go, there are things that I’ve learned help us travel easier and better since I have this really annoying lung disease called LAM. Hope these tips for traveling with a lung disease (or possibly any chronic illness) are… … Continue reading Rare Disease Day… Post about traveling with a rare disease – Lam

Rare Disease Day February 28th 2017

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This post is not about our travels, it's about Rare Disease Day.  Every where world-wide February 28th is for bringing recognition to Rare Diseases.  I know I am early with this post but I thought I would get this out there now. I am the baby of the family the 4th child.  So as the … Continue reading Rare Disease Day February 28th 2017

Whats in the suitcase?

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    Hello everyone, hope your well today.  It's a bit warm here in Australia, we are expecting 41 deg cel today, so I am already under the air-conditioner . Turned it on at 8am! I forgot to mention that I also had in my backpack a hooded raincoat, that I had folded neatly at … Continue reading Whats in the suitcase?

Packing my back pack!

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Packing my back pack was so much harder than the suitcase.  I had my passport and travel papers in the nice wallet the Tour Company sent.  A small clear zip lock bag with my moisturizer and lip balm, and I also had some face wipes. My phone and its charger.,  travel plug, the charger for … Continue reading Packing my back pack!