On the 28th February every year marks Rare Disease Day. This year its on the 29th February - Leap Year. I have two - Tuberous Sclerosis and Lymphangiomiomatosis. When I was young around 6 I had some suspicious lumps removed from my face. I remember having them and then not having them. I know … Continue reading Its Rare Disease Day 29th February
Its Rare Disease Day on the 28th February so I wanted to share a bit more about the two rare diseases that my youngest daughter and I have. When I was young around 6 I had some suspicious lumps removed from my face. I remember having them and then not having them. I … Continue reading Lam Lung Disease and Tuberous Sclerosis
Today is TSC Global Awareness Day. You might ask what is TSC? It stands for Tuberous Sclerosis Complex. Tuberous Sclerosis affects the eyes, skin, brain, kidneys, liver, lungs, and some also have epilepsy. I have Tuberous Sclerosis Complex and so does my youngest daughter Jennifer. I was officially diagnosed when she was 1. TSC in … Continue reading May 15th – TSC Global Awareness Day
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