Lymphamgiomiomatosis

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Its Rare Disease Day 29th February

/ 3sistersabroad / 12 Comments

On the 28th February  every year marks Rare Disease Day.  This year its on the 29th February - Leap Year.  I have two - Tuberous Sclerosis and Lymphangiomiomatosis.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I know … Continue reading Its Rare Disease Day 29th February

Lam Lung Disease and Tuberous Sclerosis

/ 3sistersabroad / 23 Comments

  Its Rare Disease Day on the 28th February so I wanted to share a bit more about the  two rare diseases that my youngest daughter and I have.   When I was young around 6 I had some suspicious lumps removed from my face.  I remember having them and then not having them.  I … Continue reading Lam Lung Disease and Tuberous Sclerosis