Lam Awareness

The month of June is coming to a close.  June is Lam Awareness month.  Sarah from has done an amazing awareness program each year for the month of June.  Below is my piece this year.  Do go over to her blog and check them out.   Thank you for reading and following.     … Continue reading Lam Awareness

Osteogensis Imperfecta & Lymphangiomiomatosis

28th February is Rare Disease Day around the World.  Please welcome Kat and her post about Lymphangiomiomatosis and Osteogenesis Imperfecta (OI).   Every year on the last day of February is Rare Disease day, globally. While every year of my life I acknowledge the day, I have never been involved in proceedings or shared my experience … Continue reading Osteogensis Imperfecta & Lymphangiomiomatosis

“You have a collapsed Lung”

February 28th is Rare Disease Day all around the world. Today I am sharing with you a guest post - Lauren who has Lam -Lymphangiomiomatosis.   Thank you so much Lauren for sharing.   “You have a collapsed lung”. I looked at my husband Chris, whose face went white. “What does that mean?” he asked. … Continue reading “You have a collapsed Lung”